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By: (Author) Board on Life Sciences , (Author) Board on Mathematical Sciences and Analytics , (Author) Board on Research Data and Information , (Author) Committee on Applied and Theoretical Statistics , (Author) Committee on Forecasting Costs for Preserving and Promoting Access to Biomedical Data , (Author) Computer Science and Telecommunications Board , (Author) Division on Earth and Life Studies , (Author) Division on Engineering and Physical Sciences , (Author) and Medicine National Academies of Sciences Engineering , (Author) Policy and Global Affairs
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Biomedical research results in the collection and storage of increasingly large and complex data sets. Preserving those data so that they are discoverable, accessible, and interpretable accelerates scientific discovery and improves health outcomes, but requires that researchers, data curators, and data archivists consider the long-term disposition of data and the costs of preserving, archiving, and promoting access to them.
Life Cycle Decisions for Biomedical Data examines and assesses approaches and considerations for forecasting costs for preserving, archiving, and promoting access to biomedical research data. This report provides a comprehensive conceptual framework for cost-effective decision making that encourages data accessibility and reuse for researchers, data managers, data archivists, data scientists, and institutions that support platforms that enable biomedical research data preservation, discoverability, and use.
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